First, I want to thank everyone who tweeted, facebooked and texted me support and positive thoughts yesterday. It really meant a lot to know that other people out there are thinking about us and wishing us well. I know I was pretty vague about what is going on with the tween so I thought I'd fill y'all in.
He was in DC on vacation with his grandparents over Thanksgiving (more on that later) when he first noticed the pain. There was no catalyst to it, no big neck jolts or anything. He woke up, ate breakfast and then they started going about their day as tourists. He said he first remembers it after breakfast, it definitely wasn't there when he woke up that morning. He didn't say anything about it at first because he just thought it would go away. He mentioned it to me in passing on the phone, but didn't make a big deal out of it so we let it go.
When he got home (last Wednesday) he started complaining about it a little more frequently. He walked around in the morning and in the evening with his hand around the back of his neck, flinching every once in a while, but otherwise in good spirits. But by Thursday evening we decided we needed to have him looked at, to figure out what was going on and how we can make it go away.
Friday we went to his pediatrician. He did a bunch of neurological tests (all normal), narrowed down the fact that it was skeletal rather than muscular (which is even more puzzling), prescribed a week of rest, ibuprofen and ice, then sent us to get some xrays.
The ibuprofen and ice did nothing for him. The xrays all showed everything as normal. The whole "rest" thing didn't go over well.
Saturday afternoon the pain started spreading. Where it was first located on just one particular vertebra, it had now moved up and down his spine by one or two vertebrae each way. This concerned me.
Monday morning he woke up in tears. So I called the pediatrician and in we went. Same neuro tests (all normal), same stumped doctor. He gave us an urgent referral to an orthopedist at Children's and they managed to get us in that afternoon.
After chatting with the nurse, resident intern, and the orthopedist, it was decided that the best course of action was to order a bone scan for him. We have an appointment this Friday that will take us most of the day, followed by an appointment with the orthopedist to see how to proceed.
If we don't get answers from the bone scan, the next step will probably be an MRI and/or a CT. The orthopedist also suggested scheduling some physical therapy for him to help relieve the pain. And though I want his pain to be relieved, I also want to know what the heck is causing the pain.
And here we are. Waiting. He's still hurting, but its a tolerable pain and he makes it through the day just fine. Mornings and nights are the harder part.
Please keep those positive messages coming in. We're trying to keep upbeat, trying to take the whole "its probably nothing serious" approach. But distractions and hugs, for all of us, are always accepted.
4 comments:
I'm so sorry you are going through this! Neck and spine pain are always so worrisome. Hope Friday brings answers and relief soon. Hugs!
Wierd they narrowed it down so soon... Josh had a child hood friend who had Meningitis, that started with a neck ache. I thought about him every time I felt I was over reacting to kid complaints.
Hang in there I hear that tests and such have come along way since the dark ages of the early 80's. Less blood letting and fewer " mustard plaster poultices"
That is great that you were able to get into Children's so quickly! While I'm happy that haven't found anything too serious yet, I know how hard being in the position of wondering what is causing terrible pain is. We grow up expecting doctors to have almost all the answers to our health concerns. *hugs* I hope the doctors are able to provide you with some answers and solutions soon!
Keeping you and your family in my thoughts. I know this won't seem like much, but I bet this experience will teach your son that he is stronger than he ever imagined...which will help him no matter how he feels or what the diagnosis is.
I don't know if this would help since it is skeletal, but might a neck brace help him feel slightly more comfortable? They have helped me many times with neck pain and they're cheap. Can they give him anything for the pain temporarily while they're figuring it out?
We are lucky to get in so quickly, yes. I am also thankful that my friend, whose daughter is battling leukemia, will be there at the same time. We can hold each others hands.
We are getting him a neck brace, actually. It was offered up originally and he turned it down, but this morning he asked for one. I hope to get it today. So far we haven't found anything to help with the pain. That will be part of the conversation we have on Friday with the orthopedist.
Thanks for the kind words!! It means the world!
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